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Mesothelioma Support Groups Can Make a Difference
Cancer and mesothelioma support programs exist in a variety of formats. Some groups are formal and focus on learning about cancer or dealing with feelings. Others are informal and social. Some groups are composed only of people with cancer while others include family members or friends. Some are led by professionals, although most are self–help groups led by patients. Whatever the format, a support group can help you deal with the fears and problems posed by a severe cancer such as mesothelioma.
Finding a Mesothelioma Support Group
Doctors, nurses, or hospital social workers often will have information about local cancer support groups, including location, size, type, and how often they meet. Many newspapers carry a special health supplement containing information about where to find such groups. A medical center that treats mesothelioma often has support groups specifically aimed at this type of cancer. You may also find groups through your union or occupational group. These organizations are a source for cancer support groups:
Alliance for Lung Cancer
- Lists online and face–to–face support groups nationwide for lung cancer patients. These groups may also be suitable for mesothelioma patients.
- American Cancer Society
- Check with a local chapter for information about cancer support in your area.
- Asbestos Disease Awareness Organization (ADAO)
- Provides online support groups for patients with asbestos-related diseases, their families, and caregivers. It was founded by friends and relatives of asbestos victims.
- CancerCare
- A national non–profit organization providing free professional help to people with all cancers through counseling and referral.
- Cancer Patient’s Workbook
- A practical guide created to aid cancer patients and their families organize the medical and personal details that arise from the everyday reality of cancer.
- Cancer Survivors Network
- An online support group for cancer patients that is sponsored by the American Cancer Society.
- Gilda’s Club
- A nonprofit organization that provides support and networking groups, lectures, workshops and social events for cancer patients. It has affiliates nationwide.
- Lean on Me: Cancer Through a Carer’s Eyes
- A website devoted to mesothelioma victims and their families, which promotes an inspiring book written by Lorraine Kember. This book is a true story describing her husband’s vigorous struggle with the agony of mesothelioma lung cancer and her heart felt journey as she coped with the harsh reality of death.
- National Cancer Institute
- Call 800–4–CANCER (800–422–6237) and ask for the Cancer Information Specialist who will have resources about support groups in various locations.
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